Monday, October 20, 2014

Breast Feeding

Disclaimer: if you don't want to read about my experiences with breast feeding (or more accurately the lack of) I will not be offended.

The twins are actually to young to breast feed right now. Currently their corrected gestational age is 33 weeks. They have not learned how to coordinate everything that it takes to successfully breast feed, like swallowing, breathing and sucking. 

Since day one I have been pumping to get milk for them. This was really important to me because a) I know breast milk is important for their development. And b) providing them milk was the only thing I could do for them right from the start.

Pumping has been a frustrating battle. Trying to buy the stupid pump was problem number one. Our insurance will cover one 50%, the only problem with that is you had to buy from one of their authorized dealers. We went to Alpine Medical first and we had it all worked out, and when it came time to pay it ended up being a lot more than we thought. We ended up buying it on Amazon for less, and we can add it to our medical expenses this year on our taxes.

Another battle is providing enough milk for two.  The babies did not even start getting milk for a few days, so that helped buy me some time as my milk slowly came in. I opted for donor milk if I was not producing. I think they got a day of donor milk (mixed in with what could provide), before I was producing enough. "Enough" was very little thankfully. They start feeding the babies 3ml per feeding and go up from there. They were also getting food every 6 hours, and then it bumped up to every 3 hours. Their current schedule is around an ounce (30 ml) of food every 3 hours.

I was able to keep up with them until about a week ago (so about for 5 weeks). For some reason my production of milk declined. I was pumping every 2 to 3 hours, pumping at night, drinking lots of water, and trying to eat extra. I was doing all the things they told me to do but it was still low. There are lactation specialists up at the hospital, and Justin really wanted me to talk to them. I knew they would not tell me anything I did not already know, so I didn't want to. It was such a sore subject for me I knew if I startedt talking to someone I would probably just cry like crazy.
I finally ended up asking by OB. I had an appointment with her, and she recommended Fenagreek tea. I'm not a fan of tea, so I bought some supplements instead.

Fenagreek is some nasty stuff. They say it tastes like maple syrup, I just think it tastes gross. It also makes you smell gross. Besides these two horrible things, I think (combined with other things) has helped with the increase of milk.

I was up at the hospital one day, and I ran into an occupational therapist (lactation specialist) so I decided to ask her if their was anything else I could do. She was a very nice lady, but she pissed me off greatly with the "help" she provided. Her answer to my question was medication, and to be happy with what I had. I was furious by the time she left the room.

She also told me the medication can cause depression. With that fact alone I knew it was not an option for me. And after some research online I found that the medication is usually prescribed for a week, and during that week your milk can increase, and when you stop, your milk production goes back down. 

Right after this experience I finally used up all my stores in the hospital, and ran out of milk. I found this out later, but, our sweet nurse told Justin first, and he told her not to tell me right away because I was still upset about the OT. I was a little less mad when she told me, and we decided to start doing half formula half breast milk for the time being.  If we end up having a good supply they will give them all breast-milk.  I still would prefer to feed them breast-milk all the time, but it has decreased my stress level a little not worrying about producing enough.

When the babies oxygen needs started to decline, they were able to get their feeding tubes moved from their mouths to their noses. The good being, I could now start practicing latching with them.
Carla, our amazing nurse, found me a different OT to come help me. At the time I did not know that she knew of my bad experience. The other OT was much better, and I like her a great deal more.

We started with Ella, since she was the first to have her feeding tube moved. I have to say this experience was one of the most amazing of my life. To be able to have that connection with my baby was amazing to me. I was struggling with not feeling like a mother, and feeling pretty useless to my own children, and even though we were just practicing, having her in my arms, seeing her try and latch on was life changing to me.

The steps to actually feeding a preemie baby is a pretty drawn out process. For starters they cannot coordinate breathing, sucking and swallowing. And I am told the hardest part is teaching them how to latch on, which is currently what we are trying to do. They have both latched on a few times, and to see them try is the cutest thing. Before we practice I have to pump so there is not milk for them. The reason being if I were to have a let down it would overwhelm the babies, cause a bad experience, and have them not want to try again.  What I end up doing is pumping, and then when they are trying to latch on I have to squeeze just a drop for them to taste, and hopefully get them to latch.

Within a week or so we can start to give them more milk, and have them actually suck more. I still have to pump, but not a fully. After that we can try feeding them with bottles. Around this time I am going to be spending a lot more time at the hospital. Since I want to breastfeed, they need as much practice as possible, and since bottle feeding is so much easier for them, they don't want them to reject the breast because they know they have an easier option. So ideally they will have me in the day, and bottles at night.

Being in the NICU is a total roller coaster of emotions. At first I cried when I had to go the hospital, and wished that I could just stay home once in a while. Now when I go up there, It takes all my effort to leave them. There are also days where me and Justin are mad, or sad, or any other emotion you can think of. We had an experience with a nurse that made us so mad we had to leave and come back after she was gone. But, I am so grateful for the care they are getting, and I am even more grateful for the progress they have made.

Saturday, October 18, 2014

One Month

I can't believe my babies are one month old, and more so a month of driving to the hospital every day has gone by fast.
Life has been so crazy I have not been able to blog, but Wilson and Ella are doing well. A little after a week they were able to move into the low birth weight room. It has been so nice being in there.  We get our own room (there are normally two babies in one room, so with twins we get our own).
Another great thing about the U, is we can have the option of asking nurses that we like to be primary nurses.  So every time they work they take care of our babies. We have been able to find a few nurses that we really like.

The first month also had some terrifying moments. First, Ella got an infection and a few days later Wilson got one too.  At first they thought it was a UTI, but the cultures they grew from Ella's diaper never grew anything. So in the end I don't think we actually know what the infection was. Wilson's diaper grew something, but I don't know if we know what his was either.

Ella gave us the biggest scare.  She started to destroy her red blood cells.  We were pretty sure it was caused by the infection, but they ended up doing a lot of blood tests to see if there was any other problems.  With drawing so much blood, and her destruction of red blood cells she had two blood transfusions as well. All the scary tests came back negative, and the diagnosis they came up with was "unstable hemoglobin."  What that means we don't really know.  They don't treat the condition it's just something that's there, and to keep in mind, especially when she is sick.  Justin and I are in the process of getting blood test since this condition is hereditary.

They both recovered well from the infections, which was a great relief.  They have been doing great ever since.

Some other things that happened, they got eye exams. That really didn't tell us anything we didn't already know, they are underdeveloped.  The occupational therapist has been coming in and doing exercises with them, moving their legs and arms and such. Their oxygen needs have also been slowly decreasing. During Ella's infection she had to go back onto a c-pap machine.  She stayed on that for a week or so, and then went back down to the high flow machine. She is doing great with that, actually better than her brother.

The latest news is they are working on controlling their own temperture. They started with turning off their beds so the bed does not adjust to the babies temp automatically. The best part about this is they now get to wear clothes. They are so cute in their little jammies. After about two days of that, Ella's bed now has the top open. And soon Wilson will be in an open crib (most likely later today).

We are so greatful they are continuing to do well. Wilson especially has grown, he is 3.12 lbs today, and Ella is 3.2 lbs. they are the greatest little blessings. Life is not really what I expected it be. Before they were born I thought l would be sitting at home feeding and changing diapers, along with lots of sleep deprivation. It has turned out a lot different than that.

I honestly don't feel like a mother most of the time. I do when I am with them, and there is definitely that connection between us. But, when I am home I basiclly sit around because I'm so tired all the time, feeling like a lazy bum because I don't have a job (I actually did start catering weddings again, my first night back was two days ago, and that has helped).  Getting out of bed before 10:00 am is nearly impossible, due partly because I'm up every few hours to pump, and partly because of depression.

I'm not one that normally struggles with depression, and I'm pretty sure it's postpartum related. I've also had a bad case of "life sucks". There was a few days where I would cry constantly throughout the day if I was alone, most frequently in the car if I had to drive myself to the hospital. I would just dwell in the fact that life really is not fair.  Why did and do I have to go through all of this crap?? Years of infertility, high medical bills, lost jobs, never ending crap happening while I was pregnant, and now my kids in the NICU, and it seems like everyone around me is having happy, healthy babies. It was just constantly one thing after the other.
Justin was the most helpful in solving my blues.  Once I finally told him what was bothering me, he simply told me that it was OK, and that I was right, and had a right to feel that way.  Just hearing him say that made me feel better, and honestly most of my negative feelings went away after that.  Just knowing someone understood, and did not think I was crazy for thinking these things made all the difference. It's just another reason why I love my husband so much.